Tag Archives: neuro

14th Instalment: That’s that then! P1

 

Thankyou text

 

 

 

11th August 2010….

Please note that i don’t remember all of this day exactly, its hard to remember everything when you are being bombarded with so much information!

Some of what I write may not be exact but I will try my best to get it right! It is too hard for my partner to have to remember all of these events and I don’t like to ask other people so I’ll plod along as best I can!

I sat waiting with my partner and my Dad, waiting for someone to call my name, waiting to be given an answer to the biggest question I had hanging over my head!

None of us spoke, we just sat, watching, watching all the other people who sat waiting, they were also waiting for answers. Everyone’s answer would be different. We weren’t all there for the same reason.

I was in my own world again when my Partner very gently put her hand on my knee and said ‘its time’ My heart sank

I looked up and a nurse called my name for the second time.

I stood up & walked towards her, she had a very gentle voice and a kind forgiving face. I had a nice feeling about this lady.

I noticed how I felt calmer, I felt at ease.

Why did I feel like this now when only moments before I felt like my heart was going to pop out of my chest it was beating that hard!

 

I followed the nurse into a consulting room where another woman sat in a chair behind what looked like a giant desk! When I was in the room and sat in a chair next to the desk I realised that it wasn’t the desk that was huge, it was the woman that was tiny!

She introduced herself as one of the Drs on the neurology team (I don’t remember her name!)

 

She went through some of my medical notes with me and explained that she would be doing some neurological tests and asked me to make my way to the bed and sit on the side.

The lady Dr stood up and started to walk towards me, my goodness she was tiny in stature but huge in width! She was pregnant and looked as though she hadn’t got long left until due date!

 

I sat there in my own world again! I do this often! I often take myself into dream world when I should actually be concentrating on what I am being asked or told to do.

I just sat there on the side of the examining bed with my feet dangling just thinking do I take these trainers off? I couldn’t remember if I was asked to!

How odd is it that I can remember useless facts like this but not all of the tests that were done!

 

When the Dr got to me she started the tests by checking my vision, I was still blind in my periphery vision, I think I had started to get used to it if that was at all possible!

The Dr asked me to follow her finger with my eyes but to keep my head still, as I did this and she moved her finger to my right periphery, I lost site of her finger. She asked me to continue to look there and not move my eyes. Well, this seemed to be impossible! Every time I strained to keep my eye still it pulled back to the left! This was an extremely strange sensation! It felt so odd, as though I had no control whatsoever. I started to get upset so the Dr went onto a different test.

It seems such a blur all the tests she did and unfortunately i just can’t remember them all!

 

We moved to a different room when that Dr had finished doing her tests, again the friendly nurse followed us all into the room and sat at the end of the bed.

There was a happy looking Dr sitting at a desk, he stood and introduced himself ‘Dr Shehu’ I shook his hand and sat down next to the desk.

He sat and looked through my notes and asked me to explain to him my symptoms, I told him exactly what was written in my notes, I lost vision in my right eye!

He asked me to take off my shoes and socks and to lay on the bed. At this point all I could think of was ‘that’ appointment with the neurosurgeon! This time I didn’t have to strip down to my underwear, he draw the curtain around us and that lovely friendly nurse was right at the end of the bed!

He continued with even more tests, some which the pregnant Dr had already done and some new ones.

The sensory test is one that I remember, it involved the testing of the main parts of my body – face, trunk, arms, and legs – for differences in sensation. Sensitivity to touch was tested by the Dr simply by touching my skin and sensitivity to pain was tested with a pinprick. I was surprised with how little I could feel! It wasn’t something that I was aware of! After all I was here because I had lost sight in my right eye, right?

 

Once all the tests were complete Dr Shehu then handed me over to the friendly nurse that had been following us around….

 

To be continued…..

 

 

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12th Instalment: Acupuncture

Thankyou text
It was the middle of July 2010 when finally I had my appointment letter come through for the Neurology Team at University Hospital Coventry, 11th August 2010 at 3pm! That wasn’t a date that I would forget quickly! It was the day after my Granma’s birthday!

I was still going to work and had to cover at different local branches which meant a lot of travelling! This was really tiring and hard as my vision was starting to get a little worse every day, I still had pain behind my right eye and continuous headaches.

I wasn’t getting the flashing lights as much but it was getting harder to see out of my right eye! I had no sight at all in my right peripheral vision which meant every time I wanted to look to the right I had to turn my head.
This wasn’t the best of things for me to do because when ever I tried to turn my head I would get a pain shoot down my left arm. Much like an electric shock feeling! This is what I was seeing Catherine my Physiotherapist for!
Catherine had decided that because the manipulation she was doing on my shoulder area wasn’t helping with my pain she was going to try something different. She explained to me that acupuncture has been known to help with pain and suggested we try it.
I have had acupuncture treatment before, when a married couple bought our family Health Food & Ethnic Fashion Shop ‘Way Of Life’ They kept the  Health food side and turned the Fashion side into Holistic Treatment rooms. The new owners (Husband & Wife) were the main Acupuncture Consultants and offered the remaining treatment room for hire.
I was ‘kept on’ as Manager of the Health food side and took bookings for the treatments that were offered.
This is when I tried Acupuncture for the first time. I wanted to be able to tell people about the treatment from a ‘firsthand’ point of view.
I loved it. It isn’t as scary as most people think! Okay, they put needles into different areas of your body depending on the treatment but they are tiny, hardly hurt and are quickly forgotten once you start to feel the benefits from them!
Because I knew the benefits of acupuncture first hand i was very keen when Catherine mentioned it. My only concern was having to change physio’s! Meeting new people used to make me very anxious!
But this wasn’t the case as Catherine was also a fully trained, fully qualified Acupuncturist! My luck was in! A new appointment was booked for my first acupuncture with Catherine.
Even though I had had it before I was still extremely anxious about the appointment! I remember thinking how much worse my anxiety would have been if it was with someone new!
Catherine explained to me how she would be doing the treatment, it was a different method to how I had it the first time at ‘Way Of Life’ they used a technique called ‘Moxibustion’

Techniques

As well as needling acupuncture points, a traditional acupuncturist may use other Chinese medicine techniques such as:

  • moxibustion: heat is applied to an acupuncture point or meridian using moxa (a therapeutic herb) and/or heat lamps to warm and relax muscles 

 

Even though Catherine used a different technique to the one I had experienced before with the heat I still found it extremely relaxing and by the time she had finished I noticed that the pain wasn’t as bad! Bliss!

We agreed on another appointment, Catherine said she was happy to continue seeing me until I knew more from my Neuro Surgeon appointment and of course the ever looming appointment with the Neurology Team at University Hospital Coventry!

10th Instalment: Friends are always there

Thankyou tag to blog

I’ve been trying to remember a timeline to how everything happened, it all seems so ‘muddled up’
My memory tends to be quite good if I can link something memorable with a time!
I asked a close friend if she could remember when we went to see P!nk at the ‘Richo Arena’ (what was the Coventry Football Stadium) but she wasn’t sure.
I remembered I had an appointment the day after the concert because I also remember being so tired for it!
So being the stubborn person I am, I didn’t give in and Googled it!

Continue reading 10th Instalment: Friends are always there

5th Instalment: The Waiting Game

Thank you to everyone for patiently waiting for this my 5th instalment!

My aim is to inspire & be inspired, to continue to be strong & continue to be confident!
I may be slow at blogging but that is only due to my MS. As with everything, I’ll get there eventually!

 

5th Instalment: The waiting game

 

Thank goodness those scans were over with! I just had to wait for the results now.

When I next saw my physiotherapist she said she would have a look at the MRI results for my shoulder problem as it was done at the same hospital.
I did think she meant there and then!
When she finished putting all the acupuncture needles in she disappeared which wasn’t unusual!

I was having acupuncture to help with my pain as nothing else Catherine my physio tried was helping.
She always used to disappear when the needles were in place, leaving me to ‘cook’ as she called it, so this was nothing new for her to have left me.

When she returned she said that the MRI results were back and showed that I had a ‘disc bulge at the top of my spine and was very close to touching my spinal cord.
I was to wait to here from my GP for further instructions.

Only a few days passed before I had a phone call from my Drs surgery to say I was to make an appointment to see my GP.
When I saw him he told me exactly the same as what my physiotherapist had told me. He also said that I would be referred to a neuro surgeon for further investigation!

I didn’t ask my GP any questions about the appointment with the Neuro surgeon. Thinking about it now i guess i should of but it frightened me too much to be honest! It wasn’t the word neuro that scared me! It was the ‘surgeon’ part that terrified me!

I tried my best to put it to the back of my mind and continued to concentrate on my work.

I was still to hear about my scan for my eye. I didn’t let this bother me because working in an opticians I knew if it was anything ‘serious’ it would have dealt with already!

It was at this time that I had been told by the regional manager that he could see potential in me and was offering me the position of ‘store trainer’.
What this meant was to travel around all the regional stores training new staff and refreshing existing staff everything that is needed to be known about dispensing optical glasses and contact lenses.

I was also considering taking the appropriate course and exams to become a dispensing optician. So to hear the regional manager offer me this position was extremely flattering and made me realise I was going I the right direction with regards to me career.